Tuesday, June 18, 2013

NT Scan Results

Here is the post I never thought I was going to make.  Instead I thought tonight I would be posting about how I am now in the second trimester and feeling more "relaxed", although today I mostly just felt sick.  Instead I received a call from my nurse telling me that my NT Scan came back with an elevated risk for Down's Syndrome.  My baby has  1:61 chance of having Down's instead of the 1:400+ chance that's typical of someone my age (32).

I have to do more blood work to check more closely and also meet with a specialist to do a more detailed ultrasound in order to know if my baby is okay.  Part of me is terrified. I was too lucky.  My 3rd RE was just perfect, conceived on my first treatment with him, had minimal to no first tri symptoms, and here I am.  Something had to go wrong and this is it.  The other part of me says 1:61 is still not a diagnosis and doesn't mean anything, the baby is probably just fine.  I don't know.  I love my baby no matter what, but I am scared.

I could use some thoughts and prayers at this time.  I feel selfish when most of the women following this blog are still waiting for their BFP, but I am asking anyways.  I don't know when the follow-up tests will be yet because they are processing through insurance, but hopefully in the next few days I'll have an update.


  1. I will keep you in my thoughts and prayers.

  2. Good luck. I've been in the waiting gave after bad odds (though I was 1:5, so much worse and for T18, not T21). I know how difficult the limbo days are. Try and stay calm and remember that 1:61 are still pretty good. Did they give you the NT measurement?

    1. Thank you so much!! I am glad everything turned out so well for you. The fluid measurement from the neck is 1.8 mm which I am told is normal? Guessing it came up in blood work.

  3. I am hoping and praying for you. Stay strong through this. I will continue to believe that this baby is going to be happy and healthy! xo

  4. Thoughts and prayers to you. Hopefully everything will be just fine.

  5. Oh man, I was just in this awful place of waiting and worry and I remember it all too well. If you remember, my first trimester blood screen along with the NT results came back with a 1 in 120 chance for downs. Then, my second trimester screen came back at 1 in 40. I remember those feelings of fear like they were yesterday (because they practically were). I am going to tell you same thing that helped me get through...your odds are better than 99% that your baby is perfectly healthy. Don't let that less than 1% chance rob your joy right now (I know easier said than done right now).

    After we got the 1/40 results (which they say ALWAYS gets worse with the second blood draw - keep that in mind), we decided to forego the amnio and do the maternit21 bloodtest to know for sure. $500 later and an excruciating 2 week wait, we finally found out that everything was perfectly fine with baby girl. Ugh, I hated that waiting even worse than the 2ww waiting for the damn BFP!

    I am so sorry that you are having to deal with this! I so wanted your pregnancy to be worry and symptom free. You deserve that! Don't let this get you down or rob your of your joy and excitement about this pregnancy. I just know everything is fine. Just keep telling yourself...better than a 99% chance that everything is perfect!

    I will be praying.

    P.S. On a side note - I am pretty certain that the extra progesterone that we IVF-ers or IUI-ers take at the beginning of a cycle are what causes elevated levels. In my case, like yours, my NT scan came back normal (2.2) and it was my HCG alone (nearly triple the normal) that caused the test to come back at an increased risk. At a follow up ultrasound, my doc commented how "robust" my placenta was which is what produces HCG. I really think the hormones taken during a medicated cycle affect this test. Just my opinion (and research).

  6. Thinking positive thoughts! I have my scan next Friday...

  7. email me at loststork@gmail.com

    I'm sure that everything is fine and if your baby does have an extra chromosome they are still a precious little baby. And it doesn't mean that they aren't going to be healthy. I have a few friends that have kiddos with T21 and I would love to give you resources.

  8. Amber, it's Celena. If you remember, I went through major scares with my last baby, they gave him a 1 in 8 chance of having D/S. ONE IN EIGHT!! and he is totally fine. Your odds are based on ONE NT scan, NT scans are just screenings, they are not definitive. When do you meet with the specialist? Are you going to get an amnio?